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1:26 The Art of Epilepsy Boston 2019

May 17, 2019 Julie Thompson-Dobkin Art for Social Justice, Art in Education, Events, Featured, The Art of Epilepsy , ,


Vincent Buchinsky

Eclectic works of art welcomed guests to the Hidden Truths Project’s, 1:26 The Art of Epilepsy first-ever exhibit in Boston at Artists for Humanity EpiCenter on May 10. This festive evening celebrated the collaboration of our global community of artists living with the challenges of epilepsy. Together with our partners, generous supporters, and friends old and new, the evening brought new hope to the millions of individuals here and abroad who are encouraged to use their creative voices — as they embrace life beyond any shadows of their diagnosis.

This intimate gathering provided a uniquely inspiring opportunity to personally engage with the artists, to hear their compelling stories and words transformed into art — all of which created an insightful tapestry on the walls of the EpiCenter.

The evening’s brilliant introductory presentation included the short film, Universal Auras, which is the work of one of our Hidden Truths Project artists, Ingrid Pfau.  Universal Auras is a stunning reflection of Ingrid’s hospitalization and the seemingly endless testing she underwent in the hope she would be a candidate for epilepsy surgery to control her seizures.

Ingrid Pfau

Ingrid’s work was the perfect prelude to hearing from Dr. Steven Schachter honored for his vision and foresight in recognizing the many talented artists whose lives have been touched by epilepsy.  “Their courage and artistic expressions helped me understand and appreciate their abilities and individuality.  I felt their visions and words should reach others.”

Dr. Schachter is Professor of Neurology at Harvard Medical School & Director of Neurology Research at Beth Israel; he is the founding editor and editor-in-chief of Epilepsy & Behavior, and author of the book Visions: Artists Living with Epilepsy.  Dr. Schachter received an additional round of applause when Hidden Truths Project Founder Dr. Julie Thompson-Dobkin shared that it was Dr. Schachter’s work that had inspired her to launch the Hidden Truths Project, The Art of Epilepsy eight years ago and became a mentor to her in this journey.

More applause also greeted honoree, Dr. Kevin Staley, Professor of Child Neurology, Harvard Medical School, Unit Chief, Pediatric Neurology, Massachusetts General Hospital Department of Neurology.  Dr. Staley was honored for his work in neuronal ion transport in neonatal seizures and neural network dysfunction in epilepsy.

The Hidden Truths Project is extremely grateful to our partners, generous supporters, friends, and the many artists, who have declared our Boston evening a most enjoyable success! From increasing awareness of the incidence of epilepsy — one of 26 individuals in the United States will develop epilepsy in their lifetime — with a global prevalence of over 65 million people worldwide living with this condition, barriers continued to be broken down, preconceived stigmas diminished, supporting our goals to gain fuller acceptance and recognition for those living with this diagnosis. 1:26 The Art of Epilepsy continues to demonstrate the spirit of celebration and joy inherent in our mission, as we work to support these talented artists in their journey. Art transcends all barriers, to become a bridge, which unites us all, as we fight ableism and build a world of equality.

Laura Mellow

To all of our generous supporters and friends who made 1:26 The Art of Epilepsy in Boston such a successful and meaningful evening, THANK YOU  — we couldn’t do it without you!

1:26 The Art of Epilepsy Boston 2019

Please consider joining us at one – or all — of our upcoming events benefiting Child Neurology Foundation and Child Neurology Society in support of Transitions of Care program which provides resources for young people with epilepsy, as they grow from childhood into early adulthood — an area of vital importance in their journey to becoming an independent adult or the University of California, San Francisco, Pediatric Epilepsy Center of Excellence in their support of the mental health and well-being programs for individuals and their families living with the challenges of epilepsy.

Upcoming 1:26 The Art of Epilepsy exhibits in 2019:

Newport Beach, CA: September 21 at Newport Beach Civic Center
Minneapolis, MN: October 12 at Co Exhibitions
San Francisco, CA: October 26 at 111 Minna Gallery
Chicago, IL: November 2019 at Jackson Junge Gallery